Meet the Committee: Sacramento Brain Freeze

Saturday, October 17, 2020, Nimbus Dam Recreation Area

The Leadership Committee is the backbone of the Sacramento Brain Freeze.  It consists of a dynamic group of incredible volunteers that work closely with NBTS Staff to bring this annual event to fruition. If you are interested in learning more and possibly joining our team, email Jenifer Prentiss at jprentiss@braintumor.org. Meetings take place on a monthly basis on the 1st Monday of the month at 6pm via conference call.

Christine Jordan, Team Name: Team Robert

In Nov 2016 my son Robert, 27, had a gran mal seizure and after an MRI, it was determined he had a brain tumor. He is doing very well now. It’s important to me to support and be involved in NBTS events because the research process gives hope that one day a cure will be found.

Courtney Gessford, Team Name: Team Courtney

I was diagnosed with a grade II astrocytoma in July 2014. After nearly 4 years of combination chemotherapy, radiation therapy, and multiple brain surgeries I have been stable since May 2018. The NBTS advocates for all people touched by a brain tumor through fundraising, education, public policy efforts and so much more. They fund cutting edge research nationwide at the medical centers and facilities that are working towards new and improved therapies. I will continue to fight for my fellow humans that are facing challenges related to brain tumors for as long as I possibly can.

Diana Walsh, Team Name: Team Norman

In January of 2016 a mass was discovered on my brother, Norman’s, brain. My brother was 53 with so much life still to be lived. I spent a great deal of time caring for my brother in the last 4 months of his life. This experience changed my life forever and I want to do what I can to support the cause for discovering a cure.

Diane Lahola, Team Name: Allison & Neva

On March 28, 1998, when Allison was 15 years old, our world changed – she was diagnosed with a brain stem glioma. She passed on March 29, 1999, a week after her 16th birthday.  Then Neva’s (Allison’s cousin) world changed in 2003 when she was diagnosed with a brain tumor at 29 years old. She passed on March 10, 2016. Both Allison and Neva were incredible hearts and have inspired me to be part of NBTS and support better treatments and ultimately a cure.

Jon Kantola, Team Name: EveryDay Left

My sister Karyn was diagnosed with a glioblastoma tumor in October 2012 at the age of 43, just as she was starting a work sabbatical to invest time in her two young children. She was forced to instead dedicate her time fighting “the beast in her brain” with two surgeries, chemo, radiation, and a vaccine trial. If Karyn were still alive, she’d be fundraising and advocating for a cure. Since she’s not…I’m working for her.

In Memory of Committee Member, Cullen…

Cullen Crackel, Team Name: Crackelacking

“I’m 32 years old and was diagnosed with a glioblastoma. Recently my wife and I had our first child, Flint. It’s important to me to be involved with NBTS to pave the way for a healthy future for others.” – shared in 2019