Meet the Committee: Bay Area Brain Tumor Walk

Sunday, June 23, 2019, Crissy Field in San Francisco, CA

The Leadership Committee is the backbone of the Bay Area Walk.  It consists of a dynamic group of incredible volunteers that work closely with NBTS Staff to bring this annual event to fruition. If you are interested in learning more and possibly joining our team, email Jenifer Prentiss at Meetings take place on a monthly basis on the 2nd Monday of the month at 7pm via conference call.

Please allow me to introduce you to our amazing team below:

Kelly Conrad, Communications for the Bay Area Brain Tumor Walk

Team: Kaiser Permanente

When you get a brain tumor diagnosis, you can feel very alone in your fears and anxieties…not wanting to worry close loved ones or unduly “freak out” friends and acquaintances. NBTS events offer me, not only a way to support the much needed research, but also an opportunity to meet and bond with fellow patients, survivors and supporters. It is very connecting and fulfilling for me.

Lauren Kwist, Administration for the Bay Area Brain Tumor Walk

Team: Lauren’s Quest

I am a brain tumor survivor. I was diagnosed with a pilocytic astrocytoma in 2015 and I had a craniotomy shortly thereafter to remove the tumor. Today I live a life almost 100% symptom free. I realize I am one of the few lucky patients. I am a committee member because I wanted to find a way to help the many other people that have suffered and will suffer more than me.

Leah Recht, Co-Chairperson for the Bay Area Brain Tumor Walk

Team: Hope By The Bay

My father died at age 58 in 2007 after a 3-year fight with a nasty chordoma on his brain stem. Even with the best medical technology at the most renowned medical facilities available, the journey seemed unknowable and insurmountable. NBTS offers resources for patients, caregivers and their families through all stages of the disease, and the research the organization funds provides real hope for improving quality of life and possibly a cure in the not-too-distant future. It is important to me to be a part of that.

Matthew George, Silent Auction for the Bay Area Brain Tumor Walk

Team: Team Primozich

I’m excited to help out the NBTS and all the excellent work it does for patients and families. I first learned of the organization through my partner Paul who had a GBM removed 15 years ago. We have been volunteering for 2 years and look forward to doing more.

Minh Nguyen, Brand Awareness and Recruitment for the Bay Area Brain Tumor Walk

Serving on the NBTS planning committee for the walk is very important because the events will help raise more awareness about the disease and also helps patients learn more about topics that are not likely talked about, the more knowledge the sooner the treatment!

Pamela Hamrick, Co-Chairperson for the Bay Area Brain Tumor Walk

Team: Stody-Power

My brother, Sean ‘Stody’ Stodelle was diagnosed with a Glioblastoma Multiforme IV in September, 2008. He was 36 years old. After a major resection, chemotherapy, radiation, and continued use of Avastin, he passed away less than 11 months later on August 9, 2009 at 37 years old. He left behind a wife of 15 years and an 11 year old daughter. I am committed to this cause because the loss of my brother devastated me and my family, and I hope to help facilitate a world where this will never happen to anyone in the future.

Paul Primozich, Silent Auction for the Bay Area Brain Tumor Walk

Team: Team Primozich

In 2001 I was diagnosed with a brain tumor which was causing me to have grand mal seizures. A team of Neurologists at the University of Michigan removed it in 2003 and I’ve been tumor and seizure free ever since. Those two years were tough and the support from my amazing group of friends and family was so important. I love the NBTS Bay Area event because it allows my partner and I to show our support to the brain tumor community and help the fight to find a cure.

Rani Menon, Mentor for the Bay Area Brain Tumor Walk

Team: Bamboo Strong

My brother was diagnosed with an Oligodendroglioma at the age of 29. He spent the next 11 years of his life fighting to try and help find a cure so that others would not have to endure what he had to. He passed after his 40th birthday almost exactly 11 years to the date of his diagnosis. My brother passed but, we continue to fight that battle in his name and in countless others who passed all too soon, in the hopes that one day no one else would endure their pain.

Stephanie Hilz, Marketing and Mentoring for the Bay Area Brain Tumor Walk

Team: UCSF

NBTS events are a valuable space for connecting with others, sharing information, raising awareness, and offering support. For me as a researcher, it is a chance to stand with those I am working to help.

Rita Patel, Mentor and Marketing for the Bay Area Brain Tumor Walk

Team: Satish’s Tumornators

My husband was a healthy bundle of energy and smiles. In 2017, on his 48th birthday, he was told that he has a very aggressive brain cancer, Glioblastoma. He rolled up his sleeves and fought with everything he had. Unfortunately, the aggressive nature of GBM is that all the treatment simply buys time. There is no cure. He passed away September 2018. Awareness increases our chance for a future cure! I want to join a movement for a change.