Community Events

Whether you are celebrating a survivor, paying tribute to a family member or friend who battled a brain tumor, or you just want to get everyone together for a fun time, all Community Fundraising efforts have a significant impact in supporting the National Brain Tumor Society’s research, advocacy and awareness efforts. We have Community Events and Community Initiatives of all sizes and types, so let’s get started on figuring out which is the best fit for you!

About Community Events and Community Initiatives

Both Community Events and Community Initiatives are carried out by people in the community, Community Organizers, to raise funds for NBTS independent of our staff driven signature events. A Community Event is when an NBTS Community Organizer decides to take on the logistics and planning of a tangible event to benefit NBTS, such as planning a 5k, bike ride, softball tournament, or party. A Community Initiative is when an NBTS Community Organizer starts any other fundraising opportunity in their community to benefit NBTS, such as asking a local restaurant to donate a % of each check to NBTS, asking for donations for NBTS in lieu of birthday or holiday gifts, or signing up for an existing race and asking for donations to support NBTS.  See our Community Fundraising Guide for some great examples of Community Events and Community Initiatives.

Steps to host your Community Event

  • Pick your event type and decide on a fundraising goal
  • Contact our National Brain Tumor Society Community Events Director lgainor@braintumor.org
  • Create an online event page
  • Organize a committee
  • Prepare a budget
  • Create a timeline
  • Reach out to potential sponsors
  • Carry out the logistics & marketing for your event
  • Host your event & have fun
  • Thank your donors, participants, and supporters!

Steps to host a fundraising initiative

  • Decide on a Fundraising Initiative and fundraising goal
  • Contact the National Brain Tumor Society Community Events Director lgainor@braintumor.org
  • Create an online fundraising page
  • Write a personalized email or letter to your network detailing what you’re doing and why you’re looking to raise funds
  • Create a contact list of those you want to reach out to for support
  • Email or mail your letter to your contact list
  • Monitor your online fundraising page
  • If applicable, participate in your initiative
  • Send thank you notes to those who donated and supported you

“The best part about organizing our event is that I get to meet new people and families each year. I usually don’t have the answers to the struggle our survivors or loved ones are facing, but I can offer support.”
Adrienne Wilk,
Bob Bard 5k Community Organizer – started in 2011

What kind of support can I expect from the National Brain Tumor Society?

  • Staff support: Our Director of Community Events, Lauren Gainor, is just an email or call away. Review your event with Lauren, obtain key resources, and get additional ideas to make sure your event is a success! Contact Lauren at lgainor@braintumor.org or (617) 237-1758
  • Website: Whether you’re hosting a ticketed Community Event or participating in a Fundraising Initiative, the National Brain Tumor Society has a fundraising webpage to fit your needs! We will work with you to create your page and then give you the resources to help you manage it.
  • Materials: Request materials for your event such as a disposable banner, information on brain tumors, and more.
  • Social Media: Tag the National Brain Tumor Society in a Facebook post and tweet @NBTStweets for a possible national retweet! If you want to be featured on your local National Brain Tumor Society’s social media, ask your Community Events staff member for more information.
  • Press Kit: We want to make it easy for you share your event with your local community and media, so we’ll provide you with a templated press kit and a how to guide on marketing your event.
  • Community Events Calendar: We’re proud of our community events and want to make sure your community knows which events are coming up. Talk to the Director of Community Events about being included in the National Brain Tumor Society Community Events Calendar.

What am I responsible for when I plan my fundraiser?

*Take a look at the Community Fundraising Guidelines and Agreement Form for an all-inclusive list of items the community event organizer is responsible for.

  • Expenses related to the fundraiser
  • Pre-event planning and event day execution
  • Advertising the event to your local community and media
  • Tracking invites and attendees
  • Designing and producing communication materials
  • Pulling permits and insurance for the event, if applicable
  • Filling in your event website template with details

What you should know as a Community Organizer

Your event’s connection to NBTS: When planning your event, please keep in mind how you talk about the event’s connection to the National Brain Tumor Society. With Community Fundraising Events and Initiatives not considered official organizational events, The National Brain Tumor Society should be listed as the beneficiary to your event with the language “to benefit” or “to support” the National Brain Tumor Society.

Expenses related to the event: All expenses part of the Event or Initiative will be the Community Organizer’s responsibility. The National Brain Tumor Society cannot open bank accounts to support Community Fundraisers and cannot be responsible for the expenses tied to community fundraisers.

Logo & Brand Usage: While we encourage you to use the National Brian Tumor Society logo in connection with your fundraising event, we do ask that you don’t stretch or distort the organization’s logo. If you have any questions about logo usage, please contact the Director of Community Events at lgainor@braintumor.org.

Submitting donations or event proceeds: Always direct donors to the online fundraising event or initiative page on the Classy platform to make an online donation – this is the fastest and easiest way for donations to be connected with your community event.

Additional ways to collect and submit check or cash donations:

  • Option 1: Community Organizers collect checks: Community Organizers can collect donors’ checks made payable to National Brain Tumor Society and send them directly to the NBTS, Attn: Community Events; such donations will be processed and acknowledged by the National Brain Tumor Society under the organization’s tax identification number. Please include a note with the checks designating which Community Event or Community Initiative the donations are for.
  • Option 2: Donors mail check directly: Event donors can mail checks directly to the National Brain Tumor Society, Attn: Community Events. Donors must record the event name on the check memo line and should ideally include a completed donation form with the donation.
  • Option 3: Community Organizers receive cash or checks made out to them personally: If a Community Organizer receives cash or a check made out to them personally, the Community Organizer is allowed to deposit the checks or cash. The Community Organizer must then send a check made out to the National Brain Tumor Society for the deposited amount or make an online donation to his/her event page for the deposited amount. If the Community Organizer submits donations this way, only the Community Organizer will receive acknowledgement from the National Brain Tumor Society. The Community Organizer is responsible for following IRS guidelines for tax deductible donations.